Australasian Bone Marrow Transplant Recipient RegistryAustralasian Bone Marrow Transplant Recipient Registry ("ABMTRR")This national registry was created and maintained by the BMT Research Unit. The ABMTRR, which has been fully funded by the Arrow Bone Marrow Transplant Foundation, has been collecting a consistent data set since 1992, and the impact of this strategy on patient treatment outcomes cannot be underestimated. The data is collected and analyzed by the ABMTRR staff and circulated to all transplanting haematologists in Australia and New Zealand. Based on the data these haematologists make changes to their treatments to optimize patient responses to care. There is little doubt that lives are saved and cures are obtained by providing treatments based on the data provided by the ABMTRR. In 2002, The Bone Marrow Transplant Network NSW (BMT Network) was formed by the NSW Health Department to link together all hospitals in NSW who perform bone marrow stem cell transplants. Previously each Bone Marrow Transplant Unit functioned relatively independently. Since the inception of the BMT Network a great deal of collaboration and sharing of treatment expertise now occurs. The BMT Network now works closely with the ABMTRR, which is still partly funded by the Arrow Bone Marrow Transplant Foundation. The teams are co-located and benefit enormously from each other's skills and contact networks. The ABMTRR is unique in Australia and is the only robust data source for Bone Marrow Transplants, which links all Australian States and Territories, and New Zealand. Doctors from all over Australia and New Zealand regularly contact ABMTRR staff for information to help with their patient treatments. A common request is for data relating to patients they may see with rare diseases, which many physicians may only see a handful of times in their career. Through the ABMTRR they have access to previous treatment outcomes across the broader local patient base of Australasia. Many special data collections conducted through the ABMTRR have resulted in significant changes to treatments, vastly improving life expectancies and providing cures. |
